Frazier Rehab – Epidural Stimulation Enrollment – 2015

Friends!

It has been quite a eventful past few weeks. Many of you might remember that last year I was invited to Frazier Rehab in Louisville KY (SCI research is endorsed by the Reeve Foundation) to determine if I qualify for ground breaking research in the Spinal Cord Injury world.

As it turned out, 2014 was not my year to participate, although I qualified, funding only allowed 8 candidates to be selected for the ground breaking epidural stimulation study. After being a little bummed out, I was still excited and amazed with all I experienced in the week long screening. With 2014 pushed to the back of my mind, I received an invitation to return for another screening this April. The only difference between last year and this year was enrollment would be offered to if I qualify.

Well test results are back…I’am a great candidate….Enrollment was offered…and I without a doubt I said, “count me in”!!

I am trying my best to stay cool and calm but the truth is,  this study is so much BIGGER than me. It will be a lot of work and require an extended time commitment in Louisville, KY, but the benefits are real and within reach!

God has opened the door to this opportunity of a lifetime! Participating will be a honor as I know by doing so, we will be one step closer to offering hope to those in my position.

so….

WHAT IS EPIDURAL STIMULATION

Research information (Click Here)

 

A stimulator is placed inside the body and wired to the spinal cord. The stimulator is controlled by a remote about the size of a smartphone. When the stimulator is on, commands such as “move my right leg” result in movement. In a way, the electrical pulses are “awakening” the nerve cells in the spinal cord.

THE STUDIES: KEY INSIGHTS

Findings published in the medical journals Lancet and Brain explain how epidural stimulation has transformed the lives of four participants with chronic motor complete SCI and enabled them to recover functions once thought to be lost.

Following implantation, each participant was able to:

    Voluntarily move his legs, ankles, hips, knees and toes when the stimulator was turned on

    Bear weight independently when the stimulator was turned on

    Move with less stimulation after repeated stimulation and daily therapy

    See increased muscle mass

    Improve blood pressure regulation

    Reduce fatigue

    Recover improved bladder, bowel and sexual function

    Regulate body temperature

The results of the study were an unexpected breakthrough. The long-held belief that a spinal cord injury is permanent has been challenged — we now know that it’s possible to recover voluntary movement and improve cardiovascular and other autonomic functions that are disrupted by SCI.

BREAKTHROUGH

The groundbreaking discovery that it may be possible to “reawaken” the spinal cord following an injury – even years after the trauma.

SUCCESS STORIES

Rob, Kent, Drew and Dustin are living proof that epidural stimulation has the potential to be effective for the millions living with paralysis and other conditions that impact movement.

This opportunity is too exciting to pass up.  I have to admit I will need some help to make this happen but I am overwhelmed at the possibility of true recovery!

I will be updating and coordinating different areas people can help if interested but it would mostly be for the transition and stay in Louisville for an extended period of time.

Please stay tuned and continued prayers are appreciated.

God continues to provide and bring good news to a not so good situation!

Much thanks for all the continued support along this crazy journey.

Noel

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